A Specialized Approach to Arthrogryposis

Understanding Arthrogryposis

Arthrogryposis is a condition in which a baby is born with joint contractures. This is a loss of movement, or a smaller range of motion, in the joint. Normally, joints have stretchy tissue. If there is a contracture, this tissue is replaced by a “non-stretchy” tissue. Without the stretchiness, joints may have a limited range of movement. If extra tissue forms around the joints, they may even be “locked” into place.

About 1 in 3,000 babies is born with arthrogryposis. Fortunately, it’s not progressive, meaning it doesn’t get worse over time. With the right treatment, most children born with arthrogryposis can lead healthy, productive lives.

The common signs & symptoms of arthrogryposis

Symptoms may vary from child to child but most children with arthrogryposis have trouble moving their affected joints. Additionally some of the main signs include:

• Stiff joints due to extra tissue
• Limited or no movement of the joints
• Joints that seem to be locked into place
• Thin, weak or missing muscles
• Abnormal appearance of joints (e.g., sloped shoulders, extended knees)

Diagnosing arthrogryposis

At LuskinOIC, we take the proper steps to identify, diagnose and treat your child’s arthrogryposis. Our orthopedic specialists analyze how the joints formed and how they are affected, sometimes using an X-ray, MRI or computed tomography (CT) scans to confirm the diagnosis.

Treatment for arthrogryposis

Arthrogryposis can range from mild to severe, and treatment is different depending on the severity. Most of the time, arthrogryposis can be treated without surgery. A child may be treated with:

• Physical therapy: A series of movements to exercise muscles, improve range of motion and build strength.
• Occupational therapy: The practice of basic things like playing with toys or getting dressed to develop fine motor skills and increase self-sufficiency.
• Casts: A shaping material is used to help a child improve movement by fixing bone alignment or keeping a certain amount of pressure on joints.

If your child needs surgery, the procedure is designed to release (loosen) the joints, muscles or tendons that are restricting movement.